Because these mutations are so rare, HADDTS children slip through the cracks of the system, are being treated more as medical mysteries rather than patients, sprinkled around the globe they remain untreated, unheard, and alone.
Be part of a story like no other, one that centers around the truly mysterious CtBP genes and the children whose lives they touch. About genes that could hold the key to major breakthroughs in cancer research, neurodegenerative diseases, and aging itself.
Be part of the story.
Support our Mission
The HADDTS Foundation is a registered non-profit organization in the European Union and donations are tax deductible.
If you would like to support our work regularly, we welcome you to consider setting up a recurring donation to support our ongoing work in research, advocacy, and family support.
For donations of €5,000 / $5,000 or more, we are happy to offer personalized arrangements. If you would like greater visibility for your contribution, whether through a social media mention, a dedicated thank-you post, a feature highlighting your name or company, a symbolic check photo opportunity, or another form of acknowledgment, we would be delighted to collaborate with you to ensure it reflects your wishes.
Transparency
We rely on the generosity of our donors to fund critical research on HADDTS Syndrome. Every contribution is used efficiently to advance scientific progress and the search for a cure, with full financial transparency. We have no personnel and next to no administrative costs, allowing us to use every cent of your donation directly for our mission. All managing directors work on a voluntary basis.
All donations are used exclusively for charitable purposes.
Financial Transparency
To ensure full transparency, we publish our annual reports and organizational statutes for public review:
Reports
coming soon
Statutes
How to Donate
As a small and newly established non-profit organization, we rely heavily on a steady stream of donations to continue our work. Whether you choose to contribute through smaller, regular donations or a one-time larger gift, your support makes a meaningful difference.
All donations are tax-deductible within the European Union. We issue donation receipts for contributions of €300 or more, or upon request. Contributions can be made as a private individual or as a company, either via wire transfer or through our secure online fundraising platform.
1. Bank Transfer (one-time or recurring)
You can support our mission by making a one-time donation or setting up a standing order (monthly or annual) via bank transfer to our account at Sozialbank:
Account: HADDTS Foundation gGmbH
Bank: Sozialbank
IBAN: DE08 3702 0500 0020 2195 41
BIC: BFSWDE33XXX
2. Secure Online Fundraising Tool (one-time or recurring)
We accept Paypal and SEPA direct debit:
Secure Online Fundraising Tool
Get Involved: Fundraise with us
Share a fundraiser on social media:
Help us spread the world by sharing our fundraising campaigns on social media platforms.
Organize a fundraiser:
Organize a fundraiser in your community to support our cause, whenever for your birthday or by hosting a small event like a rare disease run.
The Impact of Your Donation
Your contribution will:
support essential research to better understand and treat HADDTS.
help families affected by HADDTS, ensuring no one faces this condition alone.
advance research into cancer, aging, and neurodegenerative diseases, due to the vital role of CTBP genes.
Every donation is precious, no matter the size. Each one brings us closer to a therapy.
Thank you for making a difference!
Contact us
Do you have any question? We are here to help! Donors, we'd love to hear from you!
For more information about the various ways to get involved, please do not hesitate to contact us. To protect our email addresses from spambots, we've provided our contact email in the form of a captcha below. Simply type the captcha to reach us via email.
