Because these mutations are so rare, HADDTS children slip through the cracks of the system, are being treated more as medical mysteries rather than patients, sprinkled around the globe they remain untreated, unheard, and alone.

Be part of a story like no other, one that centers around the truly mysterious CtBP genes and the children whose lives they touch. About genes that could hold the key to major breakthroughs in cancer research, neurodegenerative diseases, and aging itself.

Be part of the story.

Support our Mission

The HADDTS Foundation is a registered non-profit organization.

If you would like to support our work regularly, we welcome you to consider setting up a recurring donation to support our ongoing work in research, advocacy, and family support.

For donations of €5,000 / $5,000 or more, we are happy to offer personalized arrangements . If you would like greater visibility for your contribution, whether through a social media mention, a dedicated thank-you post, a feature highlighting your name or company, a symbolic check photo opportunity, or another form of acknowledgment, we would be delighted to collaborate with you to ensure it reflects your wishes.

Transparency

We rely on the generosity of donors to fund critical research on HADDTS Syndrome, ensuring every contribution is used efficiently to advance research and support the search for a cure while maintaining financial transparency. We have no personnel and next to no administrative costs, allowing us to use every cent of your donation directly for our mission. All managing directors work on a voluntary basis.

All donations are used exclusively for charitable purposes.

Financial Transparency

To ensure full transparency, we publish our annual reports and organizational statutes for public review:

Reports

  • coming soon

Statutes

How to Donate

Bank Transfer (one-time or recurring)
You can support our mission by making a one-time donation or setting up a standing order (monthly or annual) via bank transfer to our account at Sozialbank:

  • Account: HADDTS Foundation gGmbH

  • Bank: Sozialbank

  • IBAN: coming soon

  • BIC: SOZBDEFFXXX

  • Reference: Please include your email and post address for the donation receipt

Credit Card
We also accept credit card donations through a secure online payment system.

Donation Receipts

Please add your email and postal address in the online donation form or in the purpose / reference field of your bank transfer when you make your donation, so we can send you a donation receipt. Your information will be used for this purpose only.

In the case of regular donations, we will issue a single donation receipt for the total amount donated during the year.
Upon urgent request, a donation receipt can also be issued immediately.

If you live in Germany:
For donations under 300 € the German tax authorities accept a copy of your bank transfer or bank statement as a donation receipt.
For donations of 300 € or more, the HADDTS Foundation will automatically send you a donation receipt at the beginning of the following year.

If you live in another EU country:
The HADDTS Foundation will automatically send you a donation receipt at the beginning of the following year.

If you live in the US:
We are working on finding a fiscal sponsor to enable tax-deductible donations in the US. Donations are possible but are not tax-deductible at the moment.

Get Involved: Fundraise with us

Share a fundraiser on social media:
Help us spread the world by sharing our fundraising campaigns on social media platforms.

Organize a fundraiser:
Organize a fundraiser in your community to support our cause, whenever for your birthday or by hosting a small event like a rare disease run.

The Impact of Your Donation

Your contribution will:

  • support essential research to better understand and treat HADDTS.

  • help families affected by HADDTS, ensuring no one faces this condition alone.

  • advance research into cancer, aging, and neurodegenerative diseases, due to the vital role of CTBP genes.

Every donation is precious, no matter the size. Each one brings us closer to a therapy.

Thank you for making a difference!

Contact us.

Do you have any question? We are here to help! Donors, we'd love to hear from you!

For more information about the various ways to get involved, please do not hesitate to contact us. To protect our email addresses from spambots, we've provided our contact email in the form of a captcha below. Simply type the captcha to reach us via email.